"When I was pregnant I was losing weight one week then the next I gained. So the doctors sent me to the hospital for an emergency sonogram to see what was going on, that's when we found out she had CMV..."

I didn't know what CMV was. Me and my boyfriend were scared and had a lot of questions. They told us either way when I had Riley that she was going to be dead.

At 32 weeks I went in for a doctors appointment to monitor Riley's heart. Well, her heart stopped and I spent a week in the hospital to keep her on a monitor, she started doing better.

At 34 weeks on 10/30/08, I went in for an emergency c-section. She was 3lbs and 2ozs and 18" long. She was in NICU for 3 weeks then finally came home.

She was home for a week, then we ended up in St. Josephs. She went code blue, we almost lost her and they put her on life support. She looked horrible, then they took her off and she did better without the tubes. She was there for almost a week then we brought her home in an ambulance because they told us she wasn't going to make the car ride home, we were scared. She now has hospice.

She's now 5 months and growing like a weed, she can see and hear but they say she might lose that as she gets older. She still has hospice.

Riley has breathing problems and she died like 4 times on us and we had to do CPR to get her back. It's rough on her and we are still getting told she's not going to live over a year, hopefully she shows them wrong.

Riley is seeing specialists and and a pediatrician. She's doing better- still has a hard time with her breathing and her head is small because of the virus and she has an enlarged liver and spleen. She's also on a apnea monitor.

I hope this helps moms with CMV babies, it's really hard.

Submitted by her mother, Rachel