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Miranda’s Story
"I GOT PREGNANT WITHIN LIKE 2 MONTHS AFTER HAVING MY SON DEVIN. MIRANDA WAS A BIG SUPRISE BUT WE KNEW WE WOULD LOVE HER SO WE DEALT WITH IT THE BEST WE COULD..."
AT 20 WEEKS WHEN YOU HAVE YOUR USUAL ULTRASOUND THEY FOUND THERE WAS SOMETHING GOING ON IN HER BOWEL AND HER GROWTH WAS A WEEK LESS THAN IT SHOULD HAVE BEEN. AT THAT TIME THEY SAID IT WAS PROB. NOTHING TO WORRY ABOUT.
THEN I STARTED TO GO TO A HIGH RISK PLACE TO SEE WHAT WAS GOING ON AND THEY STARTED RUNNING TESTS. THEY SAID IT LOOKED LIKE IT WAS CMV.
I HAD NEVER HEARD OF IT BEFORE SO I THOUGHT OUT OF ALL THE OTHER THINGS THEY TOLD ME COULD BE WRONG I WAS A LITTLE RELIEVED AT THE TIME. BY THAT TIME THEY WHERE GOING TO TELL ME MORE I HAD TO GO TO THE HOSPITAL TO HAVE A EMERGANCY C- SECTION, SHE WAS ABOUT TO DIE...
THAT IS WHEN THE NIGHTMARE BEGAN...
SHE WAS IN THE HOSPITAL FOR 6 WEEKS AND THEN THEY THOUGHT SHE COULD COME HOME BUT HER CMV LEVELS JUMPED TO WHERE THEY COULD NOT EVEN TELL HOW HIGH THEY WHERE AND SHE STARTED BLEEDING OUT...
SO THEY HAD TO KEEP HER IN THE HOSPITAL ALL HER LIFE, SHE JUST GOT OUT AND SHE IS ALMOST 10 MONTHS OLD. SHE HAS A VERY RARE CASE OF CMV, IT HAS BEEN RESISTANT TO ALMOST ALL THEIR DRUGS BUT IT IS STAYING A LOT LOWER NOW, BUT THERE HAS BEEN A LOT OF DAMAGE DONE...
SHE HAS DAMAGE TO THE BRAIN, HER LIVER AND SPLEEN ARE HUGE, SHE HAS A WHOLE IN HER HEART, SHE IS DEAF, SHE IS UNABLE TO ROLL OVER, HOLD HER HEAD, ECT. SHE HAS A G-TUBE AND A CENTRAL LINE FOR HER MEDS AT HOME. THEY ARE THINKING SHE IS HAVING SEIZURES, AND THE LIST GOES ON...
SHE IS STILL NOT OUT OF THE WOODS WITH THE CMV, WE ARE JUST TAKING IT ONE DAY AT A TIME!! SHE WILL ALSO BE GOING BACK IN FOR SURGERY THIS COMING WEDNESDAY AND WILL HAVE TO BE IN THERE FOR A WHILE AFTER.
WE LOVE OUR ANGEL BUT IT MAKES ME SICK TO SEE SOMETHING THAT NO ONE KNOWS ABOUT DO SO MUCH TO A BABY. YOU DON'T JUST HAVE TO DEAL WITH ONE PROB BUT THE WHOLE BODY!!! IT IS SAD AND IT BREAKS MY HEART TO SEE OTHERS GOING THORUGH SO MUCH WITH THIS. BUT IN THE END I KNOW THE LORD IS STILL FAITHFUL. THE HARDEST PART IS SEEING HER SUFFER!!!
- Shared by her mother, Angela