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Krystal’s Story
"Just a short story about my little F.R.O.G..."
I was 20 years old when I got pregnant. It was a good pregnancy up until I was 6 months then I had the morning sickness and it was bad. The doctors put me on bed rest for the last few months of my pregnancy.
On July 9th 1995, I gave birth at 4:30 am to a beautiful baby girl. She was called FROG from the first time I saw her. She was green when she came in to this world (we all know what she was playing with in my belly) ha ha ha. During the first 3 months of her life I thought I had a completely healthy child. I started noticing how she was having a hard time sucking and she startled very easy and this started when she was a week old.
We had a few doctors appointments and our Pediatrician (who is the most amazing MD ever) asked if we could do a scan just to make sure things were going good. As a new mom I believed she was just a little slow and she would catch up (she was 3 months) but I did as the doctor wanted and that is when all the tests began. The night of our test for the CT scan I had received a call from Dr. Bruce Montgomerie our pediatrician asking me to meet him in his office first thing in the morning. I was a single mom, her biological dad left before her birth. The next morning I was told about her having Congenital CMV and he explained so many things to me...I was in such denial (I have no idea how I made it home) with my eyes full of tears.
My step-father Gary was watching Krystal when I came in and just collapsed after being told about the Congenital CMV. He called my mother and she came home to be with us and comfort me (I do not know what I would do without my mom). For the first week I was so scared to hold her, I thought I hurt her and felt it was my entire fault. One morning about 6 days later I walked up to my stepfather and my mom and asked if I could hold my baby. (I lived with them.) From that day forward, it has been FROG and FROG MOMMY.
Krystal has been through so much and she is amazing! We have had a lot of trying times some so scary I just can't talk about and others that have changed our life. Krystal has CMV, CP, hearing impaired, wears glasses, tube fed, seizures that are being controlled by a great diet (Ketogenic Diet) and most important a perfect smile, laugh and heart. Frog is almost 16 and doing very well! She just amazes me every day. My life is not complete without her. Frog has stated Miracle League Baseball and her friend Maddy helps her in her wheelchair to hit the ball and get to the bases!! Frog does not speak words but her eyes and smile tell a story and show the love!!!
I met my husband 8 years ago and he just fell in love with us and we fell in love with him. We were married 7 years ago and at the wedding he also put a ring on Krystal's finger and 3 months later he had fully adopted her. She loves him so very much and if you look at the photos you can read so much in her eyes.
If I can help a friend or a stranger in any way with anything I will sure try just email. I love you all and we all have the most amazing angels ever!
WITH THE HELP OF FB AND STOPCMV.ORG I MET A FRIEND WHO IS MY SOUL SISTER AND SHE MEANS SO MUCH TO ME AND HELPS ME MORE WAYS THAN SHE KNOWS!! Thank you so much Shannon Stratton you are my twin!!!
STOP CMV
- Shared by her mother, Sharon