Back to Stories
Kassidie's Story
"Kassidie was born in Wales with symptomatic congenital CMV..."
She was the first baby in Wales to be treated with ganciclovir. Kassidie spent the majority of her short 16 weeks of life in hospitals, but while she was home she was happy, very lively and was a tough little girl enduring all the treatments and testings. Regarding Kassidie's passing, her mum Sammie said, "I remember a doctor coming in and saying that they tried everything but her body couldn't fight any more and that it was the CMV that had killed her. That day will haunt me for the rest of my life. I was taken into a room to be with Kassidie and stayed the until I was dragged away by my family. I carried my baby protecting her from the outside world until she was ready to enter it, but the outside world was killing my baby. I carried her, I felt her every kick and movement , I heard her heartbeats and saw her on the screens, but I no longer have my baby with me. I cannot explain how that feels and unless someone has lost a child no one will know how I feel inside or out. I carry on for my other children, but I cry myself to sleep every night."
- Shared by her mother, Sammie