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Every year more children are impacted. Every year the need grows. Join us in the effort to stop Congenital CMV.

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Founder's Message

Janelle Greenlee
I am a proud mother of 4 children, including 2 boys and a beautiful set of twin daughters born in 2003 with congenital CMV. Riley and Rachel have cerebral palsy and are spastic quadriplegic. They are both profoundly deaf and peppered with a litany of subdiagnoses including failure to thrive, G-tube, Nissen fundoplication, seizures, breathing issues, feeding issues, visual impairment, and more. You can click here to read more about my CMV story.

Over the years, I have realized that there is no medical miracle waiting for us, no reset button. There is nothing to undo all of the damage that congenital CMV has already done and make my daughters instantly healthy. I've gone through my stages of grief, and I still do, but I still have never gotten over the fact that there are thousands, even millions of children born with congenital CMV in the United States.

CMV is a silent, stealth epidemic that needs the public's attention and efforts in order to advance solutions and save future babies from birth defects and development disabilities. But a 2008 study found that only 14% of women had heard of CMV. Pregnant women need to learn to how to prevent CMV infection, but thousands of us every year aren’t told about CMV until it’s too late.

I have a passion for this and I want Stop CMV to change that 14% problem. But nothing is going to significantly change in the congenital CMV movement until there are millions of people pushing an agenda of awareness and prevention while demanding action. As awareness of congenital CMV grows, the need to gather and organize talent from all walks of life is essential to pushing awareness and solutions forward. Stop CMV's ability to help provide solutions for those in need now while creating the crowd necessary to create the long-term changes needed are crucial to any progress we make as an organization and community.

I invite you, your family, and friends to join Stop CMV and help us in our fight to STOP CMV. Congenital CMV shouldn’t have to happen, but awareness, change, and progress won’t happen without your help. Please help us in our fight to Stop CMV and help save children from birth defects and developmental disabilities for generations to come.

Many thanks,


Founder, Stop CMV - The CMV Action Network