CMV is the leading preventable viral cause of developmental disabilities. Help us raise awareness and improve lives!
1 in 150 children is born with congenital CMV in the United States.
According to the Centers for Disease Control and Prevention (CDC), CMV is the most common congenital (meaning from birth) viral infection in the United States.
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Learn what´s happening in the Stop CMV world.
"This is the story of my Son Kethan, who is 1 year old. He was born in 18th July 2012..."
I am very excited after knowing my wife is pregnant on Nov 30th 2011 and we immediately went to doctor for initial check up and everything is fine. After that pregnancy period has went smoothly. The day has came 18th July 2012, my baby has came out to the world and doctor told us ,we are blessed with baby boy. We are very excited and happy with that news. Immediately they told baby's breathing count is more and they need to keep him observation for 1 or 2 days and told nothing to worry or panic and moved baby to NICU.
After 3 days they given my baby back and told every is normal and we can discharge from hospital. We are very happy after hearing that and discharged from hospital and came back to home. one month was passed so smoothly, we are in heaven with the baby.
After one month, my wife and baby has left to her native(my in-laws place) .Two months has passed slowly and baby is not smiling or responding properly. We are little bit worried , but we use to think it will take some time. We have taken to the local pediatrician and he told every thing is fine.
Four months was passed, now baby is five months old. Still baby is not smiling or responding to sounds. Now our worry has increased, my wife has come to my native place and went to hospital there i.e. on Nov 26 2012. Doc immediately told his head size is small and ask us to take the CT scan and TORCH test and got CT scan report immediately and found multiple calcification's in the brain. They sent the baby and mother blood sample for TORCH test. At that time , I am in Bangalore and not aware about my baby's condition. It is really a tough condition for my wife. My parents and her parents has supported her a lot. On Wednesday afternoon i.e. on 28th Nov 2012, my wife has called me, I am in office and told me about my son problem.
I got shocked after hearing that and my tears fell down from my eyes, it is really an unbearable situation never faced in my life. She told still waiting for the TORCH report to know about the actual cause. I immediately left to my native place. Next day morning I reached to my native and collected the TORCH report and went to meet the doctor. Then the Doc told, baby was infected with CMV virus and she told us to consult neuro pediatrician.
We immediately came back to Bangalore and started consulting the pediatrician’s, but where ever we go, we use to hear same words “THERE IS NO MEDICINE, PLAN FOR SECOND BABY AFTER SOME TIME ”. This is really an unbearable situation, I really cannot explain our situation. We prayed to god, what mistake we had done, why it is happening for us. My parents and in-laws use to explain us, everything will be fine. They had really given us good moral support. Really without their support, there is no world for us.
Today, my son is 1 year old. He started smiling after hearing our voice. We are really happy in heaven, when we see his smile. We are trying to give the best to him. Now we stopped thinking about the future and started enjoying the present with my son and started cherishing every moment. He is trying to rollover now. I think it will take some time to roll over completely and control his head. He is doing boxing and fighting with us, whenever we go near to his face. I has to thank our family members, relatives and friends for their moral support.
We really thank the parents for sharing their experiences, which has helped us in gaining the moral support and courage. CMV stories have really helped us to cope up again and get the courage.
"In the summer of 1995 of I was thrilled to find out that I was going to become a mom..."
"Almost 3 years ago I found out I was pregnant. I was young, scared, and excited all in one...
"Joshua's story begins at my 20 week scan at Leeds General Infirmary Leeds UK..."
"We noticed that many of the stories on your site are about older babies, children, and adults affected by CMV. We thought it might be helpful for people to know about a baby who is still fighting CMV in the NICU. That is why we decided to send Evie's story your way..."
"Our story begins in Australia when I first found out I was expecting. 8 weeks I had spot bleeding, anxious the doctor sent us for an early scan..."
"My son Noah was born November 8, 2008. My pregnancy with him was really great and I never had any issues. I always felt pretty good and I never felt sick..."
"Hi. This is our story. My son's name is Nickolas Jakub Lee. He was born January 21st, 2012..."
Only 13% of women have heard of CMV. More children have disabilities due to congenital CMV (cytomegalovirus) than other well-known infections and syndromes, including Down Syndrome, Fetal Alcohol Syndrome, Spina Bifida, and Pediatric HIV/AIDS.
CMV awareness and education can help to prevent birth defects and developmental disabilities.