CMV is the leading preventable viral cause of developmental disabilities. Help us raise awareness and improve lives!
1 in 150 children is born with congenital CMV in the United States.
According to the Centers for Disease Control and Prevention (CDC), CMV is the most common congenital (meaning from birth) viral infection in the United States.
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I work in a children's hospital and was fully aware of CMV and cCMV. I've always practiced good hand hygiene and although my pregnancy was unplanned, I doubt had I been trying to get pregnant I could afford to not work. I found out I was pregnant in April of 2012, I had some spotting initially but no sickness noted during my first trimester. During my 20 week Anatomy Ultrasound my daughter was found to have an echogenic bowel and low estimated birth weight. Since my prenatal screening came back normal, I was tested for CMV and found positive. The maternal fetal medicine (MFM) doctors recommended an amniocentesis to see if I had transmitted the virus to my daughter, a week later those results were back and I had. :-(
The MFM doctors gave me options. I could do nothing and hope for the best, I could abort my child, or I could try an experimental hyperimmune globulin (iVig) treatment. I couldn't make the decision to abort my child after careful consideration of keeping her and I couldn't deal with not doing everything possible. I opted for the treatment which took 3hrs but was worth it. The rest of my pregnancy was followed by an excessive amount of doctors appointments (by my OB and MFM), ultrasounds, and non-stress tests. Her bowel looked better via ultrasound however her estimated birth weight and head circumference was still lacking and my OB felt it would be best to induce me at 39 weeks, with the notion that she may grow faster once born.
In December of 2012, I gave birth to a precious baby girl. Everything was prepared for the worse case scenario, even the thought that she may have to be taken to the NICU. The doctors estimated her weight to be no more than 5lbs, if that. She was 6lbs 8oz. She was healthy! Although later in the night needed and IV for low glucose levels. All of her neonatal tests came back fine with the exception of her eye exam which she was found to have an inactive right retinal scar. Due to this she was prescribed 6 weeks of Valgancyclovir. She had weekly appointments to assess her birth weight and head circumference for 6weeks, also monthly eye appointments for 4months to assess her eyes. Around 3 months of age, I noticed that she was starting to clench/tighten/stiffen her left arm and not use her left leg as much as her right. We followed up with physical therapy, a neurology consult, and early intervention services in my area.
My daughter is now 14months old. She has her normal well-child visits, 6 month eye exams and hearing exams. She's currently getting occupational therapy weekly and physical therapy bi-weekly. She's prescribed to place a patch on her left eye to strengthen her right as a precaution, although the scar seems to have no affect on her vision nor look like a typical CMV scar. She is neurologically intact but has a left sided weakness/stiffness where she uses her left limbs when she wants to(lol) but it's obvious that it takes concentration. She crawls some but most scoots and recently began to stand up on her own and walk along the couch. I am proud of her accomplishments. We look forward to an MRI suggested by a neurologist when she's a little older. I hope the story of my heart, has warmed yours and has help shed some light on cCMV. :-)
On June 16, 2006, without warning, after a perfectly healthy pregnancy, I lost my daughter at 34 weeks gestation. I told the doctors to do any tests necessary and agreed to an autopsy, because I HAD to know Why... I had to know what had caused my daughter to die. 6 weeks later, we got back the autopsy results; Cytomegalovirus. What in the world was Cytomegalovirus? The worst part for me is that my doctor had to pull out a book and look it up, she had never even heard of it! How is it possible that my OB/GYN didn't know to warn me that working in a daycare could lead to the contraction of CMV and the death of my child? How could I protect my child when my doctors didn't even know the risks? CMV needs more awareness, so that no other woman has to deal with the pain I have gone through in the last 8 years.
I am a nurse and yet I have never heard of CMV. I have had a son and still didn't know. However recently CMV raised its ugly head in our family.we think My son had it in Nov 13 and then sometime then I contracted it, while I was pregnant and it's highly likely this is what caused me to miscarry :-( my husband then got sick for over 3 weeks and he got tested for everything including CMV which turned positive. Because we were starting to think about trying again I got tested and was told I likely contracted it early in my pregnancy.
I am frustrated that women are not told about CMV, we should be. This is something everyone needs to be aware of.
no one can answer me when we can safely get pregnant again. One time frame is 4 years!!! I don't have that much time.
"My granddaughter, Kaydence Leboeuf, is 2 ½ years old. She was born on August 31, 2011 with cCMV (Congenital Cytomegalovirus). This is her story.
I have written a book about my personal Story Titled "True North". This is a portion of my book.
I found myself holding a child who had just been diagnosed with severe brain damage due to a virus contracted during my third trimester. My baby cried on average 18 to 20 hour a day. His only satisfaction came from a death grip on my nipples. There we were sitting in the cancer ward waiting to be sent home from our Emergency room visit which turned out to be an extended stay with our baby boy drugged into a coma like state, nowhere near resembling the baby I’d birthed, the baby I’d brought into the hospital only 24 hours prior...
"This is the story of my Son Kethan, who is 1 year old. He was born in 18th July 2012..."
I am very excited after knowing my wife is pregnant on Nov 30th 2011 and we immediately went to doctor for initial check up and everything is fine. After that pregnancy period has went smoothly. The day has came 18th July 2012, my baby has came out to the world and doctor told us ,we are blessed with baby boy. We are very excited and happy with that news. Immediately they told baby's breathing count is more and they need to keep him observation for 1 or 2 days and told nothing to worry or panic and moved baby to NICU...
"In the summer of 1995 of I was thrilled to find out that I was going to become a mom..."
Only 13% of women have heard of CMV. More children have disabilities due to congenital CMV (cytomegalovirus) than other well-known infections and syndromes, including Down Syndrome, Fetal Alcohol Syndrome, Spina Bifida, and Pediatric HIV/AIDS.
CMV awareness and education can help to prevent birth defects and developmental disabilities.